Growing Old with Autism

By raluca.olariu@…, 9 June, 2022

Growing old when you have an autism spectrum disorder can be a challenge as some of the symptoms associated with autism tend to worsen with age. However, there are ways to help manage these challenges and live life to its fullest.

Autism is a lifelong developmental disability that affects how people think, act, communicate and relate to others. People with autism may have difficulties communicating, socializing, playing with other children, learning new skills, controlling their impulses, making friends, and understanding what others mean by certain words. They often find it hard to understand jokes or sarcasm. Some also have trouble organizing tasks and remembering things. Many people who have autism experience anxiety, depression, obsessive-compulsive behaviors, sensory issues, and sleep problems.

This article outlines how autistic adults can better cope with the challenges that come with getting older.

Research on growing old with autism

According to a recent study published in the journal Aging & Mental Health, adults with autism spectrum disorder face unique challenges in aging. The researchers found that compared to older adults without autism, those with autism were more likely to report having health conditions such as arthritis, chronic pain, heart disease, diabetes, hypertension, stroke, lung disease, cancer, and gastrointestinal disorders. In addition, they had higher rates of cognitive impairment (including memory loss), mood disorders, and substance abuse than non-autistic peers.

The researchers concluded that despite the fact that many individuals with autism reach adulthood, they still need support for successful aging. These findings suggest that interventions aimed at improving physical and mental health among older adults with autism could lead to a better quality of life during this stage of life.

Another study published in the Journal of Child Psychology and Psychiatry found that older adults with autism experienced greater difficulty with daily living activities, including managing finances, shopping, cooking, cleaning, doing laundry, taking medications, driving, and using public transportation, than did their counterparts without autism.

The researchers suggested that interventions designed to improve the ability of older adults with autism to perform everyday activities would benefit them both physically and mentally.

Key challenges faced by autistic adults

Studies show that older autistic individuals face unique challenges in terms of aging. The following are among the most common:

Social isolation – As they get older, many people with autism become more socially isolated. This happens because they struggle to make and keep friendships. It's not uncommon for them to withdraw from activities such as sports, hobbies, and parties.
Health care needs – Autistic adults need health care services that are different than those needed by younger people with autism. For example, they may need assistance managing medications and coping with changes in diet and physical activity. They may also need support with daily living tasks like bathing, dressing, eating, and grooming. In addition, they may benefit from interventions designed to improve communication and socialization skills.
Financial planning – When you're young, you plan your finances based on your current income level. But once you reach retirement age, you'll likely need to rely on financial resources provided through Social Security benefits and private pensions. Because people with autism may have difficulty managing money, they may not save enough for retirement. They may also miss out on opportunities to build savings due to poor budgeting habits.
Employment – If you were employed during your youth, you probably had access to job training and mentoring programs. These types of support aren't available for older adults with autism. So, even if you've been able to hold down a full-time job throughout adulthood, you might lose this opportunity when you turn 65.
Housing – Most housing options are geared toward families with young children. That means there isn't much space for roommates, pets, or storage areas. And if you're lucky enough to own your home, you might have to move in with family members.
Transportation – You don't always have a car when you're young. But as you grow older, transportation becomes increasingly important. You may need to use public transit, taxis, ride-sharing apps, or other forms of transportation.
Medical care – As you get older, you're at greater risk for chronic conditions such as diabetes, heart disease, arthritis, and cancer. Your medical expenses will go up as well.

Strategies for helping autistic adults cope with getting old

The following strategies can help autistic adults manage their aging process:

Engage in meaningful work – Work is one way to maintain independence. However, it's difficult for people with autism to find jobs that allow them to do what they want to do. So, if you haven't worked before, start small. Volunteer for an organization that offers a service you enjoy. Then, ask for paid employment after you gain experience.
Plan ahead – Make sure you have adequate insurance coverage so you won't be financially responsible for expensive medical bills. Also, think about how you'll pay for long-term care if you need it.
Build relationships – Relationships are essential to maintaining happiness and quality of life. So, make time to visit friends and relatives. It's also helpful to establish friendships with others who share similar interests.
Create a support network – Having a strong support system helps people with autism remain independent. This includes having close friends and family members, participating in activities outside the house, and joining organizations that provide community services.
Take advantage of technology – Technology has become an integral part of our lives. Whether we like it or not, we all depend on computers, smartphones, tablets, and other devices. So, take advantage of these tools to stay connected to loved ones, keep yourself informed, and engage in social media.
Find ways to relax – Stressful situations often lead to health problems. So, try to reduce stress by taking breaks from your daily routine. Take walks, listen to music, meditate, or read a book.